Many of the rare conditions bring physical pain, but mostly psychological pain. Those who have the disease must endure the awkward looks and comments of intolerant and malicious people. When there is more understanding and empathy, these kinds of situations will not happen. Fortunately, some brave people are not afraid to talk about their illnesses and help raise awareness. The girl with Parkes Weber Syndrome that we will see next is an example to follow …
Isa-Bella Leclair is 19 years old, and was born with a genetic disease called Parkes Weber Syndrome. This condition has several consequences, among them the lymphedema, the swelling of one of the legs.
From very early on, the young woman began to retain fluids in her right leg. It began to swell even more with time, and it kept growing until it was twice the size of the left one. “I knew there was something wrong with her body the moment she was born,” said the girl’s mother.
The physical activities were very difficult for the girl, and finding pants was a nightmare. As if that were not enough, she was the subject of comments and unpleasant looks for being different. “When I went to public places, like the mall or the beach, people kept looking at me,” says Isa-Bella.
Nonetheless, the Canadian girl has always had the support of her family. It made Isa-Bella learn to like herself and be very brave. “I always prepared for the day she came back from school crying for not being able to do some activity, but that day never arrived,” said the mother.
When Isa-Bella turned 19, she did something that became viral and has served as an inspiration to millions of people around the world. It all started with a photograph of her in a bikini on a family vacation in Florida.
The image of the young woman posing and showing her leg became viral immediately. She did this to give courage to other people with rare diseases: “I think it’s important that people suffering from health problems not only strive to be healthy, but also to rescue self-esteem and accept who they are,” explained Isa-Bella.
“My illness does not define me and I will never allow her to prevent me from wearing a bikini or a dress that she likes,” she says.
After the photographs became viral, Isaac Bella won a beauty contest in Campbellton, New Brunswick, her hometown. In addition, she has written and given interviews on Parkes Weber Syndrome, releasing information about the condition to raise awareness.
Now, Isa-Bella has already finished her course and is doing lymphatic drainage sessions to improve her condition, which are giving great results.
We wish all the best for this young warrior. It’s wonderful to see someone inspiring others and trying to make the world a better place.
Share the 19-year-old’s inspiring story with your friends and family.