Jonathan Pitre, affectionately nicknamed “Butterfly Child”, lost his life recently at 17 years of age. Throughout his life, the boy suffered from a condition called Epidermolysis Bullosa,. This incurable disease made the boy have a life of suffering. Despite this, Jonathan never gave up, and inspired thousands worldwide with his courage and positivity.
The young man from Ontario died in Minnesota while receiving treatment to ease the pains of his terrible condition. He went with his mother, Tina Boileau, but he didn’t come back alive.
Apesar da dor imensa que a família está a sentir, eles não puderam deixar de homenagear o menino nas mídias sociais: “A história de Jonathan é conhecida pelo público há alguns anos. Meu filho convidou as pessoas para a sua vida e para a sua luta diária contra a doença que ele tornou conhecida para o maior número de pessoas, a Epidermólise Bolhosa. Estou muito orgulhosa do meu menino,” escreveu a mãe.
Jonathan was named “Butterfly Child” due to the fragility of his skin. She was as delicate as the wings of a butterfly.
DEBRA Canada, which helps families who have relatives with the disease that Jonathan had, confirmed the sad news of the boy’s death. “All of our DEBRA Canada members are deeply saddened by the loss of our beloved ambassador. Jonathan fought and was extraordinary in his role as ambassador for the disease.”
Loved by the community
The child had a positivity and a joy that enlightened everyone around him. Even Pierre Leroux, the president of Jonathan’s city, also decided to pay tribute to the boy who made the city shine in recent years. “He was part of our families. To have someone so inspiring in our community, and to know that he’s gone, breaks my heart.”
Jonathan moved many people with his story, and with his advice… the boy always wanted people to focus on the good things in life, and that if we did that we would be happy. His death was undoubtedly a great loss for mankind.
Review one of the inspirational boy’s interviews here. Please be advised that some clip images are not advised to sensitive readers.
Share to pay a last homage to the warrior boy!
Source: Vamos Lá Portugal